The Cancer Support Community is a non-profit organization providing education and support to people affected by cancer. In 2008, CSC established the first community-based Research & Training Institute dedicated to the development, implementation and dissemination of evidence-based programs designed to address the unmet social and emotional needs of cancer patients, survivors and their families. The Institute engages a diverse group of stakeholders and collaborators, including academic and healthcare partners, advocacy organizations, industry, patient representatives, and the Cancer Support Community’s affiliate and online network. The Research Manager will manage multiple research initiatives related to the psychosocial impact of cancer on patients and caregivers with a primary focus on the Cancer Experience Registry and with a secondary focus on research projects as they are developed and launched.
The Cancer Experience Registry is an online initiative that gives cancer survivors and their caregivers an opportunity to share their social and emotional needs. This collective voice aids in understanding the full impact of cancer and is used to create innovative programs and initiatives to improve the cancer experience for millions. Currently, there are over 8,500 people in the Registry who either have been diagnosed with cancer or provide care to a patient.
The Research Manager will report to the Director, Research and will be responsible for: development, implementation and management of community engaged research activities of the Cancer Support Community’s Research and Training Institute, including the Cancer Experience Registry and related Research & Training projects. We are seeking an individual with strong project management and data management experience, including experience with survey development, web-based applications, and performing analyses. The successful candidate must also possess effective collaborative skills, excellent writing and communication skills, and have a strong interest in community-based research. The successful candidate for this position will have related experience and interest in public health, epidemiology, market and survey research, health informatics, and/or cancer-related psychosocial research.
MAJOR DUTIES AND RESPONSIBILITIES
Manage the Cancer Experience Registry online platform
Manage multiple datasets and research projects related to the Cancer Experience Registry with respect to survey development, data management, analysis, and related research protocols
Conduct periodic quality checks of multiple datasets
Responsible for data reporting internally to the research team
Support web-based platform for the Registry, including updating survey forms, and function enhancements, and interactive elements of the Registry
Develop research protocols, including database protocols survey development and IRB applications
Maintain contact and communication with platform developers, partners and the research team.
Aid in recruitment for Cancer Experience Registry by:
a. Working in collaboration with Communications Department to ensure ongoing enrollment and consistency in messaging
b. Acting as a liaison between the Education Department and the Research & Training Institute to ensure that dissemination of materials are reflective of patient needs
c. Acting as point of contact for registrants
d. Coordinating all activities associated with independent sites using the Registry for clinical trials
Manage other research initiatives as they are developed and launched
Other duties and responsibilities as assigned
QUALIFICATIONS
Bachelor/Master degree in social and behavioral sciences (e.g., Public Health, Epidemiology, Data Informatics, Social Psychology, or related health services field or market research) plus 2 years of data management experience. Demonstrated interpersonal and communication skills (oral and written) and the ability to work independently and take a leading role on assigned projects. Master degree preferred but extensive experience will be considered.
Experience in data development, management and reporting
Experience in data-driven, web-based applications
Highly motivated and directed, with attention to detail and ability to multi-task effectively
General administrative skills, including ease with Outlook, Microsoft Office (including Word, PowerPoint, Excel)
Familiarity with use of SPSS preferred
How to apply
Interested parties should submit a cover letter, salary requirements, and a resume’ to Susan Viana at sviana@cancersupportcommunity.org by Monday, December 7th.